Adrenoleukodystrophy Level 2

Adrenoleukodystrophy
What is it?
*Adrenoleukodystrophy- Rare Inherited Metabolic Disorder,
Inherited from Mother’s Gene
*Usually Affects- Adolescence Boys, Boys by Age 7,
Young Adults in their 20’s
*More Common- in Men
Facts:
*Symptoms- Abnormal Adrenal Gland Function, Eventually
Mental State Declines, Blind, Spastic, Weakness of the Legs,
Impaired Bladder and Bowel Function
*Cure- None Known
What can I do?
*See your Physician- as needed
*See RD- for help as needed
*See FFF RD- on line for help
*ADD- Dietary Supplements that contain Glycerol Trioleate/
Lorenzo’s Oil which Improves Blood’s Fatty Acid Composition,
Not to Improve the Disease Course
*Bone Marrow Transplantation- Experimental